Wednesday, December 31, 2008

Ten Things Tuesday, er...Wednesday


1. My kids were all three thrilled with their presents. It's hard to please a non-verbal 8 yr old, but I think we did pretty good this year. Except the fish we got died already...we won't speak of this anymore.

2. I was indulged for my birthday & it lasted over several days off and on. Maybe there are good points to having a birthday on Monday after all.

3. There was no stress for food prep during Christmas Eve or Christmas Day. I planned and stuck to the plan. Who knew that actually worked? And an extra shout out to Ore Ida frozen russet potatos. Those things are worth their weight in gold to not have to peel and boil them. Steam in the bag ten minutes, then mash. Easiest real mashed potatos ever!

4. Much pie was consumed. Birthday, pumpkin and chocolate. I love pie.

5. My gifts to my neices and nephews were a huge hit! From real tiara's to a remote controlled monster Jeep.

6. My ears don't ache which is grand! Now if they'll just pop I'd be on cloud nine. Hmm Cloud Nine pie still in the fridge....

7. Two days of Christmas break the kids were able to get outside for a whole afternoon. They jumped, swung (is that right?) and son#2 even found some mud to befriend all over his body.

8. I got a Christmas card from one of the only people I haven't found from high school. She and I were so close, I can't wait now to really reconnect!

9. I got out to the mall this past weekend (yes on purpose) with a friend for girl time. We banded together since we each go maybe once a year. Sadly we spent a good deal of time in Sears because we're both old. But we had a blast and I enjoyed the time away from my kids.

10. The baby still naps. It's my saving grace for 5 more days till school starts again.

Monday, December 22, 2008

From My Husband

For my birthday today, my husband hid presents around the house for me to liven up the day since I would be home with all the kids on a regular ol' Monday. This is the card he picked and I think it's my favorite present because it pretty sums us up.


For My Wife

You know the story.
Two people meet and fall in love,
they move all their belongings
into the same small place
and begin to make a life together.

They discover that they have three toasters,
two blenders, and not even one coffeemaker.
They don't fold their shirts the same way,
and they can't always agre on
whose turn it is to clean house.

But these are the little things,
and because these two people love each other
they find a way to work them out.
As time passes, there are other things--
money worries, illnesses, family crises.
These are the big things.
But because the two people love each other,
they find a way to work them out, too.

And on special days like birthdays,
they think about each other
and about all the fun stuff they share
and about how their love has
got them through the not-so-fun stuff.

And he says to her...
"Thanks for everything. I still love you very much."

Monday, December 15, 2008

Autism 101

When you have an Autistic person in your life it's a little hard for even the people closest to you, to understand fully what your life is like. And sometimes it's even more akward to ask how you manage certain things as a family. People feel shy about asking these things and it's understandable. Not many of us would say to someone that's lost their limb, "How did you loose your leg?" even though we may really be wanting to know so that we can better understand that person's life issues. Education, in my opinion, is power. Whether it's a friend or loved one, knowing the story behind an injury, loss or disease, gives you the compassion to understand that persons life struggles. Everyone has them, ours just may be a little different & new to you.

As a new idea for the blog, I thought I'd ask my friends random times throughout the months, to give me a few questions. Anything easy or difficult about our lives with the boys and how Autism affects us as a family. Then I will answer as honestly & plainly as possible. And if you don't know me, then I should tell you I'm pretty honest & don't do well at hiding things, so you WILL get an honest answer from me. I'm not a doctor, but I do have a degree in Child Development. But I consider myself to have my Masters in it now as well. After ten years parenting two Autistic children, I feel I deserve at least that right?;)

I also hope in months to come, that any of you that know us or even those that don't, will feel free to ask anything you would like to know. Don't worry if it's too personal, I'll let you know if it's something that I don't feel like sharing at this point in time. Now I will warn you, these questions are directed at ME, they will have answers about MY family. So please do not feel you need to compare my children & their progress to yours. If it's one thing we DO know about Autism, it's that all the children on the spectrum & their cases are very individual & different. And if you feel that what you're reading is "wrong" or I say something you don't agree with, stop reading & find yourself a new blog that you do agree with. It'll be a lot less bothersome to us both I promise.

This week my friend Lisa, who I've known since college, gave me some questions and I think they are great for starting this idea off right. Thank you Lisa for taking the time & having the interest to help me out.



1. When and how did you first find out your son's were autistic? Did anything "tip you off" as a parent?

This is a very common question actually. And I think it's the one people feel most comfortable asking. When son#1 was a baby there were things we noticed. Things that caught our attention but never alarmed us. We just waited until the next doctor appointment to ask about it. One was even by 6 months old, he never wanted to hold his own bottle. But you push that aside & say "What a lazy baby! Isn't that cute?" He also flapped his hands if excited and did walk on his tip toes. (those are sort of universal signs now) He hated anything new and would cry and place his hands over his ears if we went new places or loud places. Two examples of that are as follows.

Once when son#1 was about 9 months, we went to a high school football game outside. We made the mistake of sitting by the band. Bad idea. Son#1 flipped out crying & covering his ears and we had to leave.
Also, when he was older, about 4 yrs old, we moved to a new town & tried to attend a new church. He wasn't used to that building & cried, covered his ears and wailed. This to most people sounds like a temper tantrum, you spank them and make them do it. He put his hands on either side of the door & grabbed on and wouldn't let go. He never let go till we said we'd leave. He screamed at the top of his lungs, shaking all over and scared. You could see he wasn't just being a bratty kid. He was terrified of the new place. Too much stimulation, sensory overload. Too much for his brain to take in & process. Most of us use our brain, eyes, ears, nose etc to take in a new place & process it. Son#1 (and most Autistic kids) a visual learners, it was just too much. Like a circuit shorting out, he would have a meltdown.

Son#1 never babbled a lot or pointed at things. But I remember right before he was 18 months old, we went on a trip. He stayed with my parents and when we returned my mother mentioned he was saying baby. Son#1 had 5-6 words then. Soon after that trip, we did get the MMR shot. I just can look back & see he stopped using those few words & didn't speak again until he was 4 yrs old. The not talking, was a huge sign & that's when we sought out a doctor.
Talking to the doctor, she gave a diagnosis & we love her for being aware, it took us awhile to find her, and that she was informed about such things was a God-send. This was all so new in 1998-99. It wasn't the epidemic proportion it is now. It was just the beginning of all that.

Son#2 we were watching from day one. And the only different thing we noticed about him, was that he walked on his tip toes. (both walked early at 7-8 months) However, son#2 never spoke or babbled either. And now, he babbles, but still doesn't use words to communicate & he is 8 yrs old.


2. Sometimes friends don't know how to act or feel awkward when they discover a child is autistic. What do you recommend they do?

Umm, this is a bit more difficult to answer. Each person I encounter is so different in their personality. Some are blunt, some are so gentle & tactful, others are good at ignoring issues. I think everyone needs to do what they are comfortable with, but know that the person you're asking questions to, has their own personality also. Some only let you in so far, and other parents might be shy, upset, reserved or just relieved you cared enough to ask a question.

I'd go with how well you know the person. Get a feeling, a reading off the person. Are they relaxed? Then just be yourself. If they're uptight, look for ways to maybe help if you think that's what they need--maybe just pick up a toy that got dropped for the hundredth time. Or if they seem uptight and you see them focused & in their own world, sometimes it's better to just not add to any issues that may be going on at the time. But I think it's always good to reach out to parents whenever it looks to be a good, approachable situation. Let them know you're not scared off by their kids issues. And you can do that by just treating them like any other friend. Email them if you're worried about catching them at a bad time, or call & leave messages. Actions speak louder than words.

Maybe ask them when you see them, when a good time to call and catch up with them is. That way if there is a routine they adhere to (which I bet there is in most Autistic homes) you can avoid disrupting that therefore ensuring you get to really talk to your friend.

Around the children, I'd be yourself, don't touch or come into their space unless they approach you first. Remember all those rules about a stray dog? Sort of the same thing. You don't know this child or their issues they struggle with. Don't touch them, don't do anything to taunt them like offering food in front of them or offering candy (again, you don't know their diet or what they like/dislike--but you should ask the parent, they'd be happy for you to engage their child & will most likely tell you the way to do so). And don't get in their space unless they make the first move, you don't want to scare them. My sons are very affectionate but son#1 will tell perfect strangers he loves them when they meet him for the first time. However, son#2 does not want you in his personal space unless he comes around to "sniff" you out. Oh, and they can smell fear. Just kidding. Sort of. I think son#2 really can sense when someone isn't comfortable and it puts him at ill ease and then problems can start.

And perhaps it's good to remember there is a fine line between pity & compassion.

3. What are your thoughts about the whole Jenny McCarthy my-child-was-cured-of-autism story?

Well, here is where I might offend some people, but you asked my opinion and this is MY blog, so here goes. I read her first book on her son when it came out. It's always very interesting to me to hear about other stories of how Autism touched their life. I knew Jenny McCarthy was divorced, I wanted to know if that was a result of the diagnosis. The divorce rate among parents of Autistic parents is 80%. I wanted to know as someone with unlimited (so I thought) resources, if there was something I was missing out on to help my children. And I'm nosy. I love biographies anyway so this was a chance to peek into a celebrity's life and one who may have some of the same issues we have at our house.

First, she is a great story teller. I laughed, I cried and I learned some things about Autism I didn't know. Some things my sons never had to deal with. It was interesting. Hubbo read it. There were answers to questions we have for someone parenting Autistic children. Yes, those of us living with the disease in our home have questions for other parents too, it's probably just easier for us to ask them.

I did not read her second book. The one with "cure" in the title. I did watch her on Oprah, I did see many other interviews with Jenny McCarthy. I just got the impression (after watching her on the Oprah show) that she felt the need to cure her child of Autism. I'm not judging her motives, I think they are genuine. She is a loving mother. I just don't know that I believe any child with Autism is cured yet. Functioning on a MUCH higher level than before due to something that worked for them, YES. Now, I realize some eyebrows just went up. YES, of course I want my children cured too. I hope there is a cure, so my children can have babies without the worry of passing on this disease. But I live every day to the fullest, knowing my children will not die from Autism. There are so many other worse physical problems my children could have. We don't have it easy, but it's not the hardest road we could be walking down in life & we're fully aware of that.

I personally don't believe there is a cure yet. I think I've seen a few kids (that I know personally) do so much better in their strive for normalcy, from things like diet or therapies. That's wonderful! Thank God for that. I have seen son#1 go from not speaking and utter frustration to a verbal, high-functioning ten year old that is pretty darn smart. Even his social skills are improving daily. He's acting more like a pre-teen every day in fact. That pleases me & gives me less worry than when he was smaller. But I don't believe that even if son#2 talks tomorrow, he's cured. There are things they live with daily that will probably always be there--even if to the average person they act "normal". Each child on this spectrum is so very, very different, that I do not believe there is one cure for everyone to drink & be well. I pray there's a cure in my children's lifetime, and I hope that includes isolating the gene so it's not passed on.



Tuesday, December 09, 2008

Eleven Things Tuesday

1. Hubbo doesn't have pneumonia, he has bronchitis. Lesser of two evils.

2. A hot rice bag & Midol

3. We have central heat.

4. Son#2 stayed at school all day Monday.

5. Bunco & the many gifts it gives. Friends, fun, food & real gifts.

6. Hubbo brought me a doughnut & Frappuccino this morning.

7. My new toaster

8. Salvation Army who is coming Wednesday to pick up a ton of stuff.

9. My tree is up, even if it is listing to the side.

10. Cable television--so there was something on to watch when I was up at 2am.

11. That son#1 didn't really have a girl in his room at age 10, when the other morning first thing I hear is:
"Where's that woman that was in my bed last night? She's missing."

Turned out to be the little mom figure from a playset. Whew!

Tuesday, December 02, 2008

Ten Things Tuesday

1. Thanksgiving went as well as we could have hoped. It went by in a flash and then there was son#2 running down the road flashING. I guess sometimes we just have to embrace the warm weather in November & do apparently what comes naturally.

2. I got to see my cousins & their kids/husbands & baby on the way. One cousin home from the Air Force & others in from Virginia/Pentagon. All safe & healthy.

3. I was one of the people that was at Wal-Mart at 4am the day after Thanksgiving. Some call us crazy, I say crazy like fox. I got HUGE deals & am 99% done with Christmas. And I was home & back in bed by 7:30am. Now who's crazy??

4. Hubbo cut son#2's hair. I was not a party to this of which I was totally thankful. It can be stressful & to be honest, I was glad I wasn't home when this went down. However, Hubbo seems to have discovered that son#2 will allow him to use scissors & remain unangered now but will NOT tolerate the clippers anymore. So with son#1 going to a salon now (and son#3 has a salon appointment Saturday too), and son#2 allowing us to use scissors, we have survived another stage of growing up!! Although, when it dried, there was just a touch of Friar Tuck there...

5. Both big boys retakes for school pictures turned out FANTASTIC! (for them) Now if they'll just let me pose them & get a shot for a Christmas photo.

6. Eureka! I think I've figured out how to start & possibly win the war on clutter in my house. I have a game plan people. Now if I can just get the energy to actually put it all into motion....

7. We got to watch a lot of movies this holiday on Hubbo's new tv/Christmas present. We have an old tv in the living room he had before we married & that son#2 pulled off the entertainment center once years ago. The sound is starting to go in it & the buttons on the front stick & won't work. You can't see dark things on it so we've finally entered the world of flat screens & digital tv. Whoo hoo! I had no idea it was so CLEAR! Now I don't have to stand next to the tv when something exciting happens.

8. I'm highly thankful that although Hubbo's company Christmas party was cancelled, he still got a Christmas bonus.

9. And I'm so thankful to my book club girls. We had such fun last night discussing our Christmas books and being giddy & silly while stuffing our faces. Then our crafts were fun & sooo cute! I needed that good, relaxing time & I'm so lucky to have met them.

10. I'm very thankful that Marilyn baked & brought her Rum Cake last night to book club. I really, really, really enjoyed it. And ask anybody, I don't even LIKE cake.:)