The visit & therapy with Carson went okay Friday evening. And we did enjoy our anniversary plans, but boy are we exhausted. Mentally & physically.
Some things about the visit & this past few days haven't been so great...usually I'm an upbeat person but today is about some dissatisfaction so please bear with me.
And since there is no Congressional committee (shocking since there's one for every other occasion) that cares about my grievances, you lucky few get to hear my complaints.
Ten Things I'm Currently Displeased About:
1. Son#2 was wearing someone else's pants when we got to visit him Friday night. A tad shocking considering there's only one kid as big as him.
2. Therapist was just as I had pictured her matching her voice. Young, unmarried, no kids & rather naive. I don't need Nancy Nice, I need Greta Go-Getter. And she tried to tell us son#2 only had two pairs of shorts! What?! When we checked him in, he had 7+ pairs. And every piece of clothing had a big white laundry tag ironed in with his first & last name on it. *sigh!*
3. We dropped off more pants, a hoodie and two hats I knitted for him---by Saturday night they couldn't find them. Or the bag they came in that I did not intend to leave.
4. Son#2 had the worst stuffed up nose I've ever heard when we were there Friday night. He even had some weird tic sniffing thing he was doing we've never seen. And with a deviated septum already, we're afraid that this summer's headbutting spree could have complicated that situation. It was sad at how little air he was getting. At one point we were afraid he would pass out. Seriously.
Give him a decongestant you say? I wish. They react with the meds he takes & make him angry.
He does seem to be better but it was bad there for awhile. He was so pitiful.
5. We aren't getting much information. Unless LaToya is there, we don't talk to anyone. They just leave the phone on speaker for son#2 to listen to us. Last night he was giggly which was nice but no one to ask what he had for dinner or how his day was. Boo!
It's like the left hand doesn't talk to the right hand. I'm not sure they are even attached to the same body at this point.
6. I got a call this afternoon from the nurse that son#2 had a big bruise on his right forearm. It apparently happened right after we left Friday night. His roomate got angry & bit him. No idea why. And no one caught it till yesterday--weekend staff--but they were too busy yesterday to call me & inform me about it.
7. The weekend staff that we met, although older than me, seems to be like having teenagers babysit. They don't want to get in trouble or do anything helpful, they just want to get their paycheck and go home. At least this is how "Upset Mommy" is viewing things today through angry eyes.
8. The therapist informed us Friday that we need one more in person meeting before the end of this month. That just leaves THIS weekend. Back to back is pretty hard. But since it was her boo-boo, she decided to offer to come in Saturday morning and let us do therapy then so Hubbo doesn't miss any work.
Then we *do* get our first pass with son#2 and get to take him to lunch for a couple of hours. THAT is going to be the highlight of my week!!
9. Okay, okay...I got all the negative out & I'm not a gonna leave on a sad note. I'm just not wired that way.
I'm SUPER thankful my awesome Moms could come & stay with the kids this whole weekend. She had fun but had to endure A LOT of games, puzzles & books with son#3. I think she was very glad to get home but enjoyed her time with us.
And I know both the kids did.
And a funny son#1 story...
10. When we took my Moms to lunch after church Sunday, we chose an authentic Mexican restaurant. We had to stop and get son#1 some fries from Carl's Jr. to take with him to eat. You can totally tell we didn't/don't get out often because this was his observation--thankfully whispered(albeit loudly) to me.
After seeing the waiters take our drink & food orders, he leans over to me & says, "Why is that guy acting Mexican?"
Subscribe to:
Post Comments (Atom)

2 comments:
Oh Jules...
Don't be fearful to express your concerns to the director there...and follow up with written documentation.
They need to realize from the get-go that you are a strong advocate for Carson and his care needs to be attentive and vigilant. We continue to lift you all up in prayers...
Nanc
Sorry it was a rough week! Your concerns are totally legitimate, and I hope you get to talk to someone about them. The story about the Mexican restaurant cracks me up!
Post a Comment